扒哥吃瓜

Skip to main content
Transparency data

Blood Spot Task Group

Updated 28 April 2026

漏 Crown copyright 2026

This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk.

Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned.

This publication is available at /government/publications/uk-national-screening-committee-register-of-interests/blood-spot-task-group

This register lists declarations made by聽members聽in respect of interests they have that are relevant to the remit of the UK National Screening Committee鈥檚 (UK NSC鈥檚)聽blood spot task group聽(BSTG).聽

Dr David Elliman聽(chair)聽

  • none

Dr Felicity Boardman

  • interests listed on FMCH register

Dr Jim Bonham

  • interests listed on FMCH register

Gina Brondel聽

  • 苍辞苍别听

Christine Cavanagh聽

  • works for Genomics England on the Generation Study聽

Dr Anupam Chakrapani聽

  • none

Dr Llion Davies聽

  • Grant funding 鈥� 4 Nations research聽LifeArc聽bid in relation to rare diseases data聽

  • British Medical Association representative committee roles聽

  • Faculty of Public Health committee role and deputy faculty advisor since September 2022

Jane Fisher

  • interests listed on FMCH register

Dr Sharon Hillier

  • interests listed on UK NSC register

Catherine Joynson聽

  • member of Royal College of Physicians Committee on Ethical Issues in Medicine 2023 to 2027 (unpaid)聽

  • Cardiff University聽MSc Genetic and Genomic Counselling 2023-2026, self-funded research on Fatherhood and Cystic Fibrosis聽

Rachel Knowles聽

  • part-time employee and聽Clinical Principal Research Fellow聽at聽University College London (UCL)聽

  • part-time employee of the Medical Research Council (MRC)聽

  • MRC / UK Research and Innovation (UKRI) 鈥� Associate Director for Clinical Research Policy, Ethics and Governance聽

  • NHS England Specialist Professional and Clinical Advisor 鈥� Clinical Advisor to the Newborn Blood Spot Screening Programme聽

  • unpaid聽member of the Confidentiality Advisory Group of the Health Research Authority

Dr Robin Lachmann

  • interests listed on FMCH register

Prof Mariska Leeflang聽

  • 苍辞苍别听

Dr Helen Lewis-Parmar聽

  • 苍辞苍别听

Prof Anneke Lucassen聽

  • interests listed on UK NSC鈥痳别驳颈蝉迟别谤听

Amy Jayne McKnight聽

  • 苍辞苍别听

Nick Meade聽

  • CEO of Genetic Alliance UK, which received funding in 2024-25 from: Alexion, Amicus Therapeutics, BioCryst Pharmaceuticals, Biogen, Chiesi, Ipsen, Janssen, Jazz Pharmaceuticals, Johnson & Johnson, Kyowa Kirin, Novartis, Orchard Therapeutics, Pfizer, PTC Therapeutics, Roche, Sanofi, Takeda, UCB, Vertex, Genomics England, Robert Luff Foundation Trust,聽LifeArc,聽Inthallo,聽D鈥橭yly聽Carte Foundation, Department of Health and Social Care, Scottish Government聽

Prof Stuart Moat聽

  • Cardiff University honorary chair since 2018聽

  • UK MRC Grant (MR/Y008057/1):聽Co PI Lipidomic and Metabolomics for rare disease diagnosis聽

  • Waters: newborn blood spot聽(NBS)聽second tier test聽and diagnostic assay development, kits/reagents supplied free of charge to undertake work, publishes data聽

  • Revvity: NBS assay development, kits/reagents supplied free of charge to undertake work, publishes data聽

  • Illumina: advising on聽proteomic Diagnostic assay development 鈥� potential applications for聽newborn blood spot screening, publishes data聽

Dr Heather Payne聽

  • Trustee of Representative Body of the Church in Wales (since January 2025).聽Elected lay member, unpaid聽

Liz Robinson聽

  • 苍辞苍别听

Dr Graham Shortland聽

  • interests listed on 鈥�UK NSC鈥痳别驳颈蝉迟别谤听

Susan Spillane聽

  • 苍辞苍别听

Sarah Stevens聽

  • 苍辞苍别听

Sian Taylor-Phillips聽

  • interests listed on UK NSC听谤别驳颈蝉迟别谤听

Dr Ellen Thomas聽

  • works for Genomics England and聽is聽the Chief Investigator of the Generation Study聽

Prof Rachael Wood聽

  • interests listed on FMCH鈥痳别驳颈蝉迟别谤
Back to top