Health and Social Care Secretary Sajid Javid speech at Alzheimer's Society 2022 conference
The Secretary of State for Health and Social Care, Sajid Javid, gave a speech at the conference on Tuesday 17 May 2022.
Thank you Gina ā not just for your warm introduction, but for everything you do, raising awareness and supporting other people living with dementia. Thank you very much.
And Iām also grateful to the Alzheimerās Society for bringing us all together this afternoon.
I canāt begin to reflect on what the future holds without acknowledging the challenges of the past 2 years. Whether itās the people living with dementia, or those around them who love and care for them, I know dementia is difficult at the best of times. The pandemic made it doubly difficult.
Dementia made some of the steps we needed to take to combat the pandemic a lot harder: like extra handwashing or socially distancing. Or families and carers, who had very little respite.
But I know itās the emotional side thatās proved toughest over time. It runs deeper than the smiles and hugs we all missed.
Many of you have tirelessly smashed the taboos around dementia ā like the idea dementia is a hidden disease. Lots of you ā people like Gina ā are proof that people with dementia shouldnāt be hidden away from society.
But sadly, the pandemic saw us all spend more time behind closed doors, physically separated from society and the people that we love.
So I want to say a huge thank you to all of you, for your tremendous courage and resilience in the most extraordinary of circumstances.
When I accepted this role nearly a year ago, I made it my priority to safely remove so many of the restrictions around COVID. Burdens that kept us apart through these difficult times. Weāre now leading the world in learning to live with COVID, and Iām proud of how far weāve come.
Yet even with these brighter days ahead, I know it will take some time for us to recover from this collective trauma. And, of course, the challenges of conditions like dementia havenāt gone away.
Over 900,000 people in the UK are believed to be living with dementia. In 2020, it was the leading cause of death (in England and Wales) after COVID-19.
Yet even when weāre faced with such stark statistics, itās important to remember how we got here.
Economic growth, medical breakthroughs and vastly improved health and care services have seen life expectancy increase by more than a decade in our lifetimes. Itās one of the great triumphs of the 20th century. Weāre all living longer.
If weāre to get the 21st century right, we need those extra years to be spent in good health.
And sadly thatās not the case for too many people. By 2025, 1 million people in the UK are expected to have dementia, and is expected to rise to 1.6 million by 2040.
There has been some great progress in recent years.
David Cameron used the rotating chairmanship of the G8 to convene the worldās first G8 dementia summit ā which took the dementia challenge onto the global stage. And that passion for global action against dementia has continued in his current role as President of Alzheimerās Research UK.
And I do want to pay tribute to David, because I remember very well when I was in his Cabinet: he dedicated an entire cabinet session to dementia and invited Alzheimerās UK to speak to us. They enrolled us all as ādementia friendsā, and even all these years later now Iām Health and Social Care Secretary, I still reflect on what I learned back then.
The Challenge on Dementia 2020 was another landmark piece of work, which saw a million care workers and a million NHS workers receive dementia awareness training. Over the 5 years of the strategy, the government invested some £420 million on dementia research.
But the pandemic has stemmed the tide of progress. Despite the best efforts of the NHS, it became harder for some people to get a timely diagnosis, because the pandemic made it more difficult to access memory assessment services. I know the Alzheimerās Society has estimated over 30,000 people didnāt receive a diagnosis because of the pandemic.
Equally, we know from your brilliant research that tens of thousands of people are still missing out on a dementia diagnosis each year because they confuse key symptoms with getting old. As you say: āItās not called getting old, itās called getting illā.
So, while these broader demographic trends, combined with the rising prevalence of dementia, were always going to take us to a crossroads ā a moment where weād have to rethink how we do health and care in this country ā the pandemic has brought us to these crossroads a lot more quickly. In fact, weāre there right now.
I think one of the reasons why we havenāt made as much progress on dementia as we would like is because itās going to take some pretty seismic shifts, both in terms of the architecture of health and care and our own approach.
Thatās hard to do. Reform takes time. And you need to take people with you. But itās a journey weāve already begun ā and itās a challenge this government is unafraid to take on.
Our plans for adult social care will help improve experiences for people with dementia and their families: with a far more generous means-testing, a cap on life-time costs to increase support and development for our phenomenal workforce.
The new Health and Care Act ā which received Royal Assent just a couple of weeks ago ā puts integrated care boards and integrated care partnerships at the heart of our system. Joint working and joint budgets will be directed towards caring for people and keeping them well in the first place.
You may also know that we asked Claire Fuller ā a GP and Chief Executive of Surrey Heartlands ā to conduct a stocktake of how primary care works within the new system. Now this is important, because we know that primary care is where the bulk of prevention can happen ā and GPs play a crucial role in referring people with early signs of dementia. So Iām looking forward to hearing Dr Fullerās views.
We know that joined up care is better for people with dementia and their families. Implementing the proposals in our integration white paper will be another important part of what we need to do. The white paper looks at everything from better data-sharing to multidisciplinary working across health and care, with the ambition of improving the experiences of those who use our vital services.
All of this taken together means our future work on dementia is going to take place in a very different health and care context ā one which is much more preventive, professional, and joined up.
Not only that, but the combination of the demographic shifts we all know are coming, the setbacks of COVID-19 and the incredible opportunities afforded to us by pioneering research and new technology, mean we now need to do something dramatically different. We have no other choice but to step up and rise to this moment.
So thatās been the spirit behind our new dementia strategy, which we began developing last summer. Iām grateful to everyone whoās played a part and continues to play a part in bringing it to life, including the Alzheimerās Society. That work is still ongoing, but today I want to tell you a bit more about what it will look like.
In short, I want it to be more ambitious than anything weāve done before. To begin with: I want our dementia strategy to be a 10-year plan, not just 5. Because we can only get to grips with long-term challenges by thinking long-term.
Iād like us to be as bold as weāve been with our 10-year plan for cancer. It will be driven by the same 4 themes behind our reforms in health and care ā what I call the ā4 Pāsā: prevention, personalisation, performance and people.
Letās look at prevention for a moment.
Itās estimated that as much as 40% of dementia is potentially preventable. 40%.
We now know that whatās good for the heart is also good for the brain. Action on high blood pressure, physical inactivity, alcohol, obesity and healthy eating all have a part to play.
So weāre going to be very ambitious on prevention, because I donāt accept that dementia is an inevitable part of ageing. It isnāt.
Weāre going to be equally ambitious on research.
Weāve already committed Ā£375 million into research on neurodegenerative diseases over the next 5 years ā and Iāll work across government to boost this further.
It means measuring ourselves against the leading countries globally and being unafraid to find new ways of working. It means being bold about finding new medicines and new treatments. It means being ambitious on new technology, like genomic sequencing and digital biomarkers. And it means continuing to smash taboos ā just as you do so brilliantly, every single day.
So Iām really excited about this ā and Iām excited to work with all of you get it right. Because itās no exaggeration to say that our future depends on it.
Weāre at the crossroads. All of us here today, we understand the challenges that lie ahead. When it comes to dementia, we know there have never been any quick fixes. We know there arenāt any easy wins.
But we also know that when a visionary plan comes together, with powerful partners and proper funding ā and we couple it with care and compassion ā that combination can be unbeatable.
Thatās going to be the mission ā and Iām grateful to have partners like you to share it with. Thank you.